Abigayle Lobsinger's Journey
This GoFundMe campaign has been set up in order to help the family with the growing costs and to bring awareness to this horrible disease.
Abigayle Lobsinger is a sweet child and has shown a lot of people just how tough she is. Through the treatment, the pain, the awful side affects, she has not complained. In the words of her father, She is " Waterloo's Toughest Cookie".
Please help support this family. Every little bit helps.
May 20th, 2019
Abigayle was home for the weekend! The family took the long weekend to rest and spend some family time together. Abigayle is still considered quarantined for a few more days as the radiation from treatment continues to wear off.
Long weekend couldn't come at a better time as Abigayle has a busy week ahead. Tuesday she will return to Sick Kids in Toronto and Wednesday receive a "mini" stem cell transplant to help fight the cancer in her bone marrow. If all goes well she will come home Thursday then off to McMaster Hospital on Friday for a check up, blood tests, possible transfusion and a dressing change for her Hickman.
Many thanks to Abigayle's parents for keeping us updated on how Waterloo's Toughest Cookie is doing! We are all cheering for you Abigayle!
Abigayle has now been transferred to Sick Kids Hospital in Toronto. While there Abigayle will undergo a new treatment called MIBG Therapy.
This treatment will have Abigayle receive a large dose of radiation through the lines of her Hickman in hopes that the radiation being internal to her body can better source out the cancer cells and eliminate them. During her admission to hospital she will not be allowed any visitors including her 3 older sisters. Mom and Dad can only be in the room one at a time for very limited time periods to protect them from residual radiation.
After discharge, Abigayle will go home but must remain in a quarantine type environment. She must remain in one room only of the Lobsinger home and she cannot share a washroom with her sisters or parents for a minimum of 10 days.
To help increase her immune system Abigayle will receive multiple blood transfusions during outpatient appointments at hospital. Because Abigayle still has stem cells in storage at Sick Kids hospital from March of 2016, she will also receive a mini transplant to introduce new healthy stem cells into her system in hopes of fighting off the cancer cells in her bone marrow.
Once an estimated period of 6 – 8 weeks has passed, Abigayle will have tests done again to determine if the MIBG Therapy treatment was a success. There needs to be an extended wait period to ensure all the radiation has left Abigayle’s body for proper test results.
During the 6 – 8 week recovery period Abigayle will have many trips to hospital for check-ups, blood tests and transfusions, as well to monitor side effects of the MIBG Therapy treatment.
Abigayle’s entire family would like to thank everyone who has contributed to her Go Fund Me page over the past 3 ½ years. The outpouring of affection has overwhelmed them. The donations received help the family not only with costs directly related to Abigayle’s medical expenses like nutritional supplements, parking, gas, meals and accommodations, but the funds also help to make up for lost wages when her parents take time away from work to be with Abigayle for her many appointments and admissions to hospital and assist with their household expenses.
They would also like to thank everyone that made Abigayle’s early birthday celebration so special for her. Abigayle turns 7 while in Sick Kids for MIBG Therapy, to give her such a special party and send off before she left was truly special not only to Abigayle but her entire family.
"Abigayle has stage 4 neuroblastoma, a rare and aggressive form of childhood cancer.
As she undergoes treatment, it's been difficult for Abigayle to gain and maintain weight, so her doctor prescribed a tube feed supplement to help her maintain a healthy weight.
This cost was covered through OHIP+ until April 1st, when the Ford government rolled out changes to the program. The change means Abigayle's parents are now forced to pay hundreds of dollars a week for the nutrition she requires to fight cancer.
This government needs to get their priorities straight and support kids like Abigayle. " ~ Catherine Fife
Please consider sharing Abigayle's GoFundMe campaign on your social media to raise awareness and support for her and her family during this truly challenging time.
hi there :) I wanted to share some information, maybe it wont be helpful but my daughter is also on peptamen for tube feeds. We ran into the same issue with the OHIP+ changes as my husband as coverage, but this isn't covered. I wondered if your daughter had homecare through the LHIN? If she does, they will issue you a ODB card and with a physicians prescription, it would be covered. I hope that you can sort something out because I know first hand how expensive that formula is. I sincerely hope something will change, and i am sending all my love to your sweet daughter!
If you could email or message me, I was wondering what supplements she’s using. I no longer have my g/j tube but have a few cases of different supplements (since my guts were picky about what they would handle). And I was wondering if any of it is the kind she uses. They’re still before the expiration date.
Left a package on the front porch Sat. Hope you found it. Thinking of your family and praying for Abigayle’s recovery.
I am a homecare dietitian. Is your daughter under the LHIN (receiving homecare services)? If so, she should be able to receive an ODB card, which should cover the cost of the feed, as long as she has a doctor's Rx.
To Abigayle and her family, stay strong guys. You have a lot of support.....you'll get through this.....