In July 2020, Adam got a tick bite during a camping trip with his family (the picture above is from the day he got the tick bite). He took out the tick and did not think much of it.
In September 2020, he started developing multiple unexplainable symptoms. He had severe headaches, fatigue, insomnia, racing heart, and constant ringing in the ear. He also started to experience periodic numbness of different parts of his body, confusion, anxiety, brain fog, and stomach aches. Adam was losing weight and went down from 72 kg to 61.5 kg very quickly. He continues to lose weight and become weaker and weaker.
His health was deteriorating fast and he was no longer able to go to work, share the household responsibilities, and play with his children. His children were (and still are) confused as to why their daddy is lying in bed all day long unable to move.
Adam visited the ER frequently and saw various specialists, including Neurologists, Cardiologists, and Gastroenterologists. He was even admitted to Sunnybrook Hospital once for a thorough investigation and was dismissed. Nothing shed light on his condition.
Adam and his family were becoming increasingly desperate. They felt abandoned by the medical system and decided Adam needed to seek diagnosis and treatment internationally. He traveled to Israel and was finally diagnosed with Lyme Disease and Babesiosis. Both conditions can be life-threatening. The diagnosis was only the beginning of his journey. Unfortunately, there were no treatments available for his conditions in Israel.
While easily treated at the beginning, Lyme Disease becomes almost untreatable in the advanced stages (like Adam`s). Adam has to be on a high dose of antibiotics all the time.
Even on the strong antibiotics, Adam's health has been deteriorating. This disease has caused him brain damage. At times, he is not able to recognize his own children or their names. Adam currently is not able to get out of bed. Lyme Disease caused him to develop problems with his heart and stomach. He has blackouts, a constant ringing in his ear, and has developed depression and anxiety. His condition is getting worse every day.
Unfortunately, Canada does not recognize advanced Lyme disease as a true diagnosis. It also does not accept international diagnosis. While easily caught in blood tests in the early stages of the disease, specialized testing needs to be conducted to diagnose advanced stages of Lyme Disease (this testing can cost about $5000). These tests can be done in Germany and the United States. Even with these tests, Canadian medicine will not recognize Adam's need for treatment.
Due to Canada's inability to recognize advanced Lyme Disease as a true diagnosis, no official treatment for the disease is offered here. There are different and more efficient types of treatments in the US and Europe including getting antibiotics through IV, BVT (Bee Venom therapy), Hypothermia, ozone therapy and many more. While there is no cure for advanced stages of Lyme Disease, there are treatments that can make life more manageable.
Unfortunately, the required treatment is long and expensive. For example, the treatment in the Lyme Medical Centre in Arizona, US (not including accommodation expenses) for a few months is 50,000-100,000 USD. The cost is approximately the same in Europe.
Adam and his family are struggling financially now. His wife is a social worker who works with seniors. This family of 4 was left with only one income. Adam's lost his job as a result of the disease and does not have disability benefits. Their families live far away and they have no one here that can support them.
Adam and his wife recently learned that the disease can be sexually transmitted. This means that his wife might have Lyme disease as well. Although she is asymptomatic, symptoms may appear years later. The clinics they have spoken to have told her that she will need to get treatment as well. She will need to go through diagnostics (which are difficult to receive in Canada and are expensive as well) to determine if she has the disease.
Adam applied to clinics in the US and in Europe in hopes that one of the clinics will accept him and treat him. I will update this page to let everyone know which treatment he will end up having and the cost of that treatment. Since there is no cure for Lyme disease and it is lifelong, Adam will need to do various therapies his entire life. The money you will donate will help with providing Adam with treatment, his wife with treatment, accommodation costs, and future treatments he will need to do once he stabilizes.
Adam must get the treatment and return to be himself for his kids and wife. Any contribution will help tremendously in his situation.
If you have any information you would like to share that may be helpful for Adam, you can feel free to contact me.
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