With a recent stroke of good luck, Emma has been confirmed as a match, and will be donating a portion of her liver to Sloan on June 24, 2021. After surgery Emma will be unable to even lift, let alone take care of Sloan for at least three months. During this procedure Emma will be at Toronto General recovering while Sloan will be at Sick Kids.
Emma and Adrian have had substantial expenses already, multiple trips for appointments to Toronto and 3 long term stays in the hospital, paying for hotel and meals, and those will continue indefinitely after Mom and Sloan's surgery. Adrian will be taking time off work to care for his family, but additional help will also be needed, not covered by OHIP. Because Sloan will be immune compromised, Emma will not be able to return to work for at least 2 years.
Many of our friends and family have asked for an avenue to help with whatever the family needs, so we decided to create this GoFundMe as a means for those who wish to help. Our goal is to enable the Family to focus on post-op recovery and health without worrying about the costs associated with it.
Adrian and Emma have set up a great update page on Facebook for you to follow this journey they are on.
Our family is grateful to everyone for all the support they have given to Adrian, Emma and baby Sloan during this journey.
Aaron , Ben and Regan
*Biliary atresia is a relatively rare disease that begins in early infancy and affects about one in every 10,000 to 20,000 infants. In biliary atresia, the bile duct that leads from the liver to the intestine becomes damaged preventing bile from leaving the liver. In the early stages the bile duct outside the liver is mainly affected, but in later stages, bile ducts inside the liver are also damaged. This can lead to a build-up of bile in the liver which can be harmful to the liver. Unless bile flow can be established, liver function is gradually lost and affected children rarely survive beyond two years of age.
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