Carly was diagnosed with the disorder called Guillain-Barré (ghee’-yan bah-ray’) syndrome, or GBS. We believe it was triggered by tonsillitis in April. She had a sharp, rapid decline over Memorial Day weekend, and was transported to the PICU at Levine Children’s Hospital in Charlotte where she was intubated and put on a ventilator to breathe that Sunday night. She has a severe case - she is fully paralyzed and has had a tracheostomy and G-tube for breathing and eating.
The good news is that she will recover. The unknown is time. To give you some perspective, her nerves will repair at approximately 1mm per day going from the top to the bottom of her body. She is 5’ 6” tall. She will need intensive rehab, both as an in-patient and then at home, and will also require home help to assist in her recovery.
Hockey is her passion and she is a talented player. In May she made the Carolina Junior Hurricanes Girls U16A team. She desperately wants to return to the sport that she loves.