On Friday August 16th our entire world was flipped upside down when our sweet baby girl Chloe was diagnosed with Spinal Muscular Atrophy.
A genetic condition that causes muscle weakness.
SMA can affect a child's ability to crawl, walk, sit up, and control head movements. Severe SMA can damage the muscles used for breathing and swallowing.
We brought Chloe to McMaster Children’s hospital emerge after noticing she didn’t have much movement in her legs in comparison to her older sister. We were admitted and tests were run at the Neuro Muscular clinic to determine what was wrong.
Never did we think SMA was going to be the diagnosis, and all we knew about the disease was fatal. So this news brought us to our knees in tears...
Although there is no cure for SMA at this time, there is a treatment (Spinraza) which has shown tremendous benefits in children treated before the age of 6 months.
Chloe had her first treatment Friday August 30th and will receive them going forward along with physio therapy. She is amongst the fastest in the world to have been diagnosed and treated.
We will fight for Chloe to have the best life possible and want to be able to give her everything she needs to make her life easier. Your donation will help with costs for further treatment and equipment she may need in future.
Our job is to share Chloe’s story until she is able to share her own, and we only hope for the best results with treatment so that one day our baby girls can run and play together.
Follow our journey; good days, progress updates and cuteness from our girl Chloe.
- Kirsten Bledsoe
- Anna Lyla
- Hayley Coito