Babies born with CDH are born with a hole in their diaphragm which allows the abdominal organs to migrate into the chest while baby is developing. This forces the lungs and heart to be smaller and less viable and less able to support life. When these babies are born they have to be put on a machine immediately that will keep them alive. As soon as they are stable a surgery is performed to place the stomach, intestines and liver back into the abdominal cavity. Then they have to try and increase the ability of the lungs to grow and work and the same for the heart. It is very touch and go for many months for these little miracles. He has since returned to the hospital a couple of times because he has problems breathing and requires a bipap machine to assist with this 16 hours a day. He is also being fed via a tube in his stomach.
Riley has had 4 surgeries, and countless other procedures, pokes, prods, x-rays, and other scans. Riley lives with his mama, who refused to give up with him during her pregnancy, and is with him every day single day, providing care that took months to learn, and his daddy.
Riley was home with his momma when their toilet tank exploded, flooding their house. Riley and his parents had to go stay in a hotel for a few days, which was a huge journey for him. Upon returning to their house, they discovered that their house is starting to mold, and most of their furniture and toys are no longer usable. A moldy house could kill Riley, and they are desperately trying to come up with the funds to get into a new house and move, and to replace all of the things they last. Currently Riley is back in a hotel with his momma and daddy, but they don't have the funds to stay in the hotel for long. Riley, his mom, and dad will be so grateful to be able to have a happy, livable, safe home.
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- Leta Gold
Organizer and beneficiary
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