Wednesday Oct 14th our dear friends Amanda and Chris found out that their 6 month old daughter Frankie had a tumour on her brain. Frankie had emergency brain surgery to remove a 6 cm long tumour (on her cerebellum). They waited a week for the results of the biopsy.
Yesterday (Oct 20th) they met with the Oncologist and found out that Frankie has an extremely rare and aggressive cancer. One that doesn’t seem to have many good outcomes, and the very few children that do make it have a very compromised quality of life. It’s called Atypical Teratoid Rhabdoid Tumor (AT/RT).
Chris and Amanda are absolutely broken. But they know they have to be strong for their little girl.
Frankie will start chemotherapy in a couple weeks time. She will do 3 rounds (3months) and reassess. If she’s responding well then she will get 3 more aggressive rounds.
About the Butler Family:
Baby Frankie was born March 23 rd 2020 at the beginning of COVID lockdown at the Canmore hospital. The birth of Frankie during COVID was a special one and the staff at the Canmore hospital holds a special place in their hearts.
Frankie has already been on many adventures with Chris and Amanda. As you can imagine being born into an athletic family, Frankie was always on a front carrier being hiked to the top of a mountain.
They live in Canmore Alberta and are an integral part of our little mountain community.
They both Nordic Ski Raced. Amanda was a 2 time Olympian and former Canadian National Ski Team member.
Chris is an electrician for Mike's Electric in Banff and Amanda is a Dr. of Chinese Medicine and Acupuncturist at Back At It Sports and Wellness, in Banff and Canmore. Both will take time off from work to be able to spend all their time with baby Frankie.
This family is just starting down a long road of uncertainty. They will need all of our love and support moving forward.
Please help support this amazing little family during a difficult time. Any amount will help and will be much appreciated!
We love you Chris, Amanda and Baby Frankie!
If you do not want to donate through GoFundMe you can donate via Etransfer to:
- Bailey Cunningham
- Johannes Minor
- Noreen Riley
- Neil Robinson
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