Matthew John Flynn, our brother, is only 38 and facing a terminal brain cancer diagnosis. He is a loving husband and father to two beautiful children. Colton just turned 6 and Evanna is a sweet little 3 year old.
This has been a difficult year for many but especially for Matthew, his kids, supportive wife Nikki and our entire family. During the middle of a global pandemic he has been quietly fighting to prolong his life. He wants nothing more than to watch his children grow and witness their next milestone. He fights to stay here with us as long as possible hoping to spend another birthday and Christmas together, to cherish these most precious joys of life a little longer, before he meets God.
Matt’s battle with brain cancer started over three years ago in January, 2018 when Doctors discovered two tumors after suffering a seizure while driving to work as an journeyman electrician. Since then he has endured four brain surgeries to resect his lesions. The most recent two surgeries revealed one of his tumors had progressed to a stage IV Glioblastoma (GBM). GBM has no cure and sadly only 5% of patients survive to 5 years once receiving this devastating diagnosis.
His treatments thus far have included: radiation therapy, surgical resections, various types of chemotherapy, anti-seizure medication and more, all while following a strict organic ketogenic diet and several adjunctive therapies (vitamin infusions, hypothermic therapy, CBD oil, you name it!). His discipline has been exemplary and any of us could only hope to show such strength facing what no one should ever have to.
Since his last MRI scan in early June, 2021 his health took a turn for the worse. He has become increasingly tired, has suffered additional seizures, and now experiences body twitching on his left side among many other unpleasant symptoms and side effects. He now needs assistance walking, getting in and out of chairs and has no strength or dexterity. He is unable to care for himself let alone his children, relying on his wife and family for help. Needless to say, Matthew has been unable to work. Nikki having been laid off for over a year as a Flight Attendant for WestJet, has also had to forgo her own return to work to care for her family.
Matt recently ceased his Cusp-9 cancer protocol to help differentiate between symptoms due to disease progression and side effects from the treatment. This daily cocktail of 9 different medications had some harsh side effects and has been nearly intolerable. An emergency MRI on his brain in mid-June, only three weeks after having a more stable scan, revealed that the cancer has spread. He now has multiple lesions in other regions of his brain. This suggests that his rapid physical and mental deterioration over the past two weeks are due to disease progression. Unfortunately, this is what this horrible disease of GBM does, it spreads and slowly takes over a person’s brain and body. These new tumors are not operable and his Doctors have advised him to get his affairs in order as time will be priceless moving forward.
Matthew is a warrior and strong in all sense of the word. Prior to his diagnosis, standing at nearly 6’5” was a physical specimen. He lifted weights and worked out religiously, nourishing his body with a discipline rarely seen.
Facing death before anyone his age should have to with everything he has is a testament to his fighting character. Watching him deteriorate is painful beyond words but Matt has the heart of a hero. He won’t be told, “there is nothing we can do” and neither will we. Everyday there is a chance of new therapeutic advancements. He has an entire army of friends and family standing behind him in this battle. After all, love and hope are undoubtedly the most powerful medicines.
He is commencing a new treatment Zirabev, an infusion he will receive every 3 weeks moving forward. The cost estimate thus far is $5000 per treatment. Additionally, he will continue his adjunctive therapies as follows:
IV vitamin infusions: 3 x weekly @ $160 = $480/week
Hypothermic therapy: 3 x weekly @ $375 = $1,125/week
Ozone therapy: 3 x weekly @ $500 = $1500/week
+ Zirabev ~ $5,000 monthly (every 3 weeks more precisely)*
Matthew’s revised treatment plan: TOTAL= $8,105/month
*Zirabev is indicated for the treatment of recurrent GBM in adults. It has the potential to shrink/suffocate and stabilize his tumors in hopes of regaining some motor skills and increasing quality of life for as long as possible. He is commencing this treatment immediately and is to be scheduled for his first dose. We have applied for funding for this medication however the Pharmacist and Oncologist have emphasized no compensation is guaranteed even in part.
Telling Matt that we were going to try and raise more money for his treatments brought him to tears. Those who know him well will attest that he is the biggest softy, despite his tough exterior, with the most kind and gentle heart. Any support we can show him whether monetary or through well wished messages and prayers help lift his spirits to keep fighting.
Thank you to everyone who has helped support Matt and our family. Please email any fighting words, found memories or nostalgic photos to [email redacted] (.com)
All proceeds raised through our fundraising initiative will go directly to pay for Matthew’s medical treatments. Should any monetary support not make it in time, it will be put in Trust for Colton and Evanna Flynn.
DonationsSee top donations
- Alicia & Gered Marcellus
- Kent Sowden
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more