Quick Story: My almost 10yr old son Jerico has Autism and Extreme Oral Aversion & Complex Eating challenges. The ONLY thinghe eats have been discontinued and we are trying to find the remaining stock of Nature Paths Maple Cinnamon waffles. I am asking for help to find and cover the costs of the waffles plus a deep freezer to store them as they are frozen.
Jerico is almost 10 and has been struggling with eating since he was 8 months old when more textured food was introduced.
He has autism (diagnosed at 2yrs old) and suffers with extreme Oral Aversion and complex eating challenges plus highly sensitive gag reflex.
I’ve tried everything including intense feeding therapy but it triggered major anxiety around eating which triggered his migraines which then he stops eating/drinking and regresses. It’s a vicious cycle.
I have always had to be very careful even before covid with any sicknesses as Jerico stops eating & drinking if he gets sick at all. In February 2020 he became very sick (suspected covid) where he actually stopped eating for 12 days and stopped drinking for 5 days. It was very traumatic for our family - I am a single mom of 3 boys (2 with autism). When I was able to get him to start again he had regressed so much he had to relearn how to drink and eat. It was very hard but he accepted a different kind of cinnamon waffles. Unfortunately due to covid those became temporary discontinued in June due to covid and we had to hunt for the remaining stock. As we tried to find the last boxes of waffles I was also trying to sneak new kinds of waffles in, in hopes he would accept them. 2 weeks went by with me trying every kind when he finally accepted Natures Path Maple Cinnamon Waffles. I was so relieved that finally he accepted a new kind as I was almost out of the old kind. I was also happy it was a company that I thought was local so I wouldn’t have to go through that amount of stress again.
But here we are, beginning of 2021 and the same hunt is on. This time his flavour of waffles have been completely discontinued. I’ve tried to see if there’s anything comparable around but there’s nothing and nothing he will accept. I’ve been asking others to help me find the remaining boxes which has been a amazing amount of support. Not everyone understands the severity of Jerico’s challenge and think that eventually he will just accept another kind but it doesn’t work like that. He would go on a hunger strike if I didn’t have his waffles.
I did reach out to the company but what really got their attention was when a friend of someone who worked there saw my post, she passed along her friends email to hopefully get help for me. The people at Nature path realized they needed to help us and they are currently bringing up a bunch of boxes from the states to buy me time. I am unsure at how much that are coming but I am grateful for anything at this point.
Asking for help is completely out of my comfort zone but I have no other choice. I am hoping we can get help to find more waffles for him but also mainly praying someone seeing this that is good with replicating recipes would reach out to help me replicate the recipe for these waffles. So I can make them myself for him and never have to be under this amount of stress just trying to feed my child. I am even willing to purchase the recipe if Natures path allows that. Just needing some security that when my waffle stock runs out that I will be able to make the waffles to feed my son. I’m just trying to feed my son, I’ve been through so much around him just eating, something that would be simple for other children but it’s a extremely hard challenge for my son.
Thank you from the bottom of our hearts for anyone that helps.
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