237
237
13

Emily Hood - DIPG

$22,620 of $30,000 goal

Raised by 236 people in 4 months
Created March 12, 2019
Emily's Army
on behalf of Sharon Hood
In early February, the Hood family was delivered devastating news. Emily, who had just turned 17, was diagnosed with an inoperable tumor on her brain stem. Its real name is Diffuse Intrinsic Pontine Glioma - DIPG, a very aggressive childhood cancer that still has doctors baffled.  As quick as the diagnosis came, treatment came just as quickly.  Emily underwent a biopsy of the tumor on February 22nd, and radiation began shortly after.

One of the side effects of the tumor is humor, and Emily certainly keeps her family and friends in stitches and laughing all day. She has maintained an incredibly positive attitude and is leaning heavily on her faith in God. If you have had the chance to stop and visit, text or snapchat her, you will know she's famous for asking YOU how YOU are doing.

Radiation treatments are every day and OT and PT will start this week. Sharon and her family spend most of their days delivering Emily to her appointments and jumping up when their alarms go off to administer medication. As you can imagine, this is beginning to take a toll on the family as Sharon has not been able to work and medical bills will likely start to roll in soon.

The Hood Family appreciates your phone calls, emails, texts, messages, and those of you who have already jumped in to take some of the pressure off so they can worry about Emily, not the small stuff.
+ Read More
Just about two weeks ago, after Em went to visit Dr. Vitanza at the lab, she started the downward spiral again. Loss of hearing, horrible headaches, inability to walk on her own, all the things. Last week she started what's considered to be "standard care" - two infusions and one pill. It was a staggering nine hour day that started with a post radiation MRI and visits from pretty much all of her specialists and practitioners with Palliative Care thrown in there for the first time. As soon as we arrived she ordered her favorite pancakes to be delivered when she was allowed to eat. As long as the day was, she was an absolute delight and quite the trooper; so much laughter! She asked Dr V to get a matching tattoo with her (still up for discussion). Dr. Sato, her neurologist, stopped by for a hug and they discussed nail color and Maui with her NP, Susan. It was a constant flow of drugs, cat-naps, food and good people. The day after the meds started, Emily started walking on her own again. We are incredibly grateful for the knowledge and wisdom of her doctors and continuously pray that God will lead them to a cure for DIPG.
- Mark and Sharon
+ Read More
We should be halfway to Paris right now. On Saturday Em sat down on the couch and announced that she's just too sick to go. She said what we were all thinking and I believe there was a collective sigh of relief. She's had such a great few weeks, probably the most normal days of all since her diagnosis. The last few days have been just terrible for her. We are struggling to find something to help her with the headaches, she has had several falls and can no longer walk on her own and uses the wheelchair when we leave the house. The nausea is never-ending. She tried once to leave the house today and we didn't make it out of the neighborhood because it was just too exhausting for her.

After conversations as a family, with her doctors and our sweet friends at Make-A-Wish, it was decided that at the very least we will postpone this latest adventure. Emily is frustrated and it has made her determination even greater in finding her next course of action. When she's awake she's on the computer researching clinical trials and furiously scribbling notes for her doctors. So much fight in our Lady Warrior. We're praying that it's just the radiation continuing its work and not a progression of the tumor. Please continue to lift our family up in prayer.
- Mark and Sharon
+ Read More
What a weekend it was! The wrestling clinic with Helen was a blast and a huge success! Over 120 wrestlers came out to learn and to support Emily. After the clinic, Make-A-Wish WA/AK threw a little party for Em because they’re sending her to France! She is a big history buff and asked to go to the Palace of Versailles so that’s where we’re going, among other places! We’ll be staying in the most wonderful apartment in the heart of Paris, just next to the Seine River. It’s going to be a magical week.

Tomorrow we celebrate Emily’s last day of radiation; it’s gone by very quickly. She’ll have 4 weeks off then we’ll jump back into further treatment to fight this tumor.

Thank you all for your continued prayers and support. We’re incredibly grateful.

- Mark and Sharon
+ Read More
Emily ran today! She goes to radiation every day at 3:00 pm and there just happens to be another teenager who goes just before her. They both happen to have brain tumors (different kinds) and have become good friends.

As we were leaving, Emily grabbed her friend’s wheelchair and took off out of the elevator running through the building like she had no cares in the world. They spun in circles and laughed like crazy all the way down the corridor. We’re so thankful for the friends God has inserted into our journey. When you’re spinning in circles and laughing you forget for just a minute, that battle we are fighting.

Last week Emily was invited up to 1380 KRKO Prep Sports Weekly Radio to do an interview along with her coach, Terry Ray. She went to school that morning, followed by radiation, then headed up to Everett for the interview, never skipping a beat ( https://soundcloud.com/everetts-greatest-hits/prep-sports-weekly-03-28-19?fbclid=IwAR1nzEAC6gB-kALiz8_DWB2vo0usD352dHXOIF1KNeeLuoaF2JbnI6VkwuU). She shared a little bit of her story as well as information about the upcoming wrestling clinic that her hero, Helen Maroulis, is putting on in her honor. Helen arrives tomorrow evening and will run the clinic on Saturday, April 6th from 10 am to 12 pm at Edmonds-Woodway High School.

Emily has only THREE days left of radiation! She’ll get 4 weeks off then we will jump into the next step which will be a Clinical Trial as there is not a cure for DIPG yet. On April 1st she had a port placed in her chest in anticipation of the next step. Please continue to lift us up in prayer as we have big decisions to make in the near future.

We are continually amazed on a daily basis at the kindness of friends, family and people we’ve never met. Thank you all for loving and supporting us.

- Mark and Sharon
Emily’s Army Facebook Page
https://www.facebook.com/EmilysArmyFightLikeEm/?__xts__
+ Read More
Read a Previous Update

$22,620 of $30,000 goal

Raised by 236 people in 4 months
Created March 12, 2019
Emily's Army
on behalf of Sharon Hood
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
JG
$245
Jim & Georgi Gentry
21 days ago
CI
$50
Colleen Illsley
24 days ago
JA
$50
Judy Allen
1 month ago
GG
$245
Georgi Gentry
1 month ago
PP
$100
Patricia Pearson
1 month ago
ER
$50
Eva Robins
2 months ago
ER
$50
Eva Robins
2 months ago
$100
Anonymous
2 months ago
KG
$100
Kaylee Goulding
2 months ago
LS
$100
Linda Smith
2 months ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
Receive occasional updates from GoFundMe about how to help others. Change your preferences anytime
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.
Receive occasional updates from GoFundMe about how to help others. Change your preferences anytime