Max the Warrior

$11,550 of $15,000 goal

Raised by 147 people in 5 months
Created November 28, 2018
TEAM MAX
I’m a mom of two and was going about my day when I discovered a post by Connie. I met Connie after making a donation to a family services organization she works for in Medicine Hat, Alberta. Connie, a single mom of two boys, came and picked up my donation and we connected.

This morning, I opened my FB page to Connie’s post and was horrified to read her following words:

Please moms always follow your instincts. Two weeks ago, I noticed my son, Max, (8 years-old) had a purple dotted rash. By Friday, it was a bit worse and he was pale. I knew he had been exposed to someone with mono recently. My gut told me to take him to a walk-in clinic so I did. I requested blood work for mono and the doctor decided to order blood counts. We went home, and it was business as usual. I got a call from the blood lab three hours later. They were panicked. They told me to get my son to emergency right away and to ensure that he didn’t fall or get bumped on the way there. Once we got to emerg, I was told he had no platelets and the rash was blood vessels bursting under his skin. He was bleeding all over, on his insides. They asked for a urine sample and it was the color of Pepsi. The doctors immediately flew us to Calgary’s Alberta Children's Hospital. We have been here since last Friday. The doctor’s diagnosed Max with Atypical HUS (Atypical hemolytic uremic syndrome http://www.ahuscanada.org/wp-content/uploads/aHUS-Fact-Sheet-March-2015.pdf) Max is fighter but last night his kidneys finally gave out. He is currently waiting to go for surgery to insert a tube into his abdomen to start dialysis. They suspect it started from E.coli but all tests have come back negative. The reason I am sharing this is in the hope that moms always follow their gut insist when you feel something isn't right. Please send my little man positive thoughts and prayers while we continue fighting this nasty fight. ❤

Having my own children as well as nieces and nephews—with one nephew who’s the same age as Max—Connie’s story has distressed me greatly. I really want to help. Connie is going to need assistance with expenses such as lost wages, travel and childcare. She was hesitant to let me start a go-fund me page but did, on the condition, that if there’s any funds raised over-and-above what she needs, it will be used to support other families at Calgary’s Alberta Children’s Hospital.

As it stands, Connie and Max are still at the hospital where Max, the little warrior, is recovery from surgery and is on dialysis. This is a rare disease he’s fighting and they’re going to need all the help they can get. I know there are a million amazing causes to give to at this time of year, but if you could, please find it in your heart to help this single mama out and make this unimaginable crisis a bit more financially bearable. It’s every parent’s worst nightmare.

Thank you & Merry Christmas!
Janelle Hullah
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Here is an update on Max. They have an extremely long road ahead of them .

Connie was asked "How is Max"? Her answer:

That's a simple question with a complicated answer! He is doing better in the fact that he is happy, playing and eating well. The other side of that is the doctors believe it is Atypical HUS and his body will not be able fight off the virus on it's own. They have requested authorization for a medication that will block the HUS from his body forever. The medication will be 4 doses (through IV) in the first month then once every 2 weeks for the rest of his life. It costs about $10k per dose and is the 4th most expensive drug in the world. They aren't 100% sure it will work but they all feel it is the next logical step. Atypical HUS is extremely rare. The doctors have never seen a profile like Max's so they are doing their best to figure it out. Please keep us in your thoughts and prayers ♥️
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$11,550 of $15,000 goal

Raised by 147 people in 5 months
Created November 28, 2018
TEAM MAX
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